“Dream – nothing!  We should act right now because responsibility for our future lies on our own shoulders.” – Dalai Lama

 

 

 

GEORGIA NEWS

 

Advancing Excellence in Nursing Homes Campaign Begins to Get Word Out to Consumers: Georgia 1 of 3 States with 100% Participation

(Source: WABE)

The "Advancing Excellence in America's Nursing Homes Campaign" provides information and questions to help families understand nursing home care planning, staffing, good care and ways to measure resident and family satisfaction. Here, WABE's Steve Goss, talks with the chair of the campaign's steering committee, Dr. Mary Jane Koren...  Working together to improve quality; including a staffing focus – adopting “consistent assignment” where staff can really KNOW the resident; new consumer tip sheet now available (www.nhqualitycampaign.org).  Georgia one of three states with 100% participation.  The Local Area Network (LANE) is to be housed within the Culture Change Network of Georgia   WABE radio news clip from Monday, April 5th

Linda Kluge, Director, QIO/Georgia Honored

Congratulations and KUDOS to Linda Kluge, Director, QIO/Georgia, gmcf for being honored with the Distinguished Service Award at the Aging Services of Georgia Conference.  Linda is a tremendous supporter and advocate of Culture Change.  Georgia is very fortunate that Linda is working everyday to make life better for our elders!

 

Public Policy Update: General Assembly Struggles with Budget

Last month it was reported that Aging Services of Georgia has supported an effort to appropriate “civil monetary penalty” (CMP) funds to programs supporting Culture Change.  These CMP dollars, which are collected as fines on nursing homes, according to federal law must be spent to benefit residents of nursing homes. 

 

There are only a few days left in the 2010 legislative session, so it is still unclear how this will turn out.  The Culture Change Network of Georgia hopes for an opportunity to help develop a plan for these funds which will benefit the quality of life of the elders in our state.  Stay tuned…

 

Wesley Woods Newnan-Peachtree City Holds Two Days of Culture Change Training With Alice Truluck

(Source: The Times-Herald)

The staff at Wesley Woods recently took part in an “exciting” training session with Alice Truluck, a national “Culture Change” educator and mentor.  Truluck conducted two day-long sessions on March 17 and 18 for employees on the values and principles of culture change for health care.  In addition to the entire staff of Wesley Woods of Newnan, many employees from sister retirement communities in Atlanta and Athens attended the training…  MORE

 

 

 

CULTURE CHANGE EVENTS

 

Conversations with Carmen

Dr. Matthew Wayne: Personalizing Diets and Med Pass

Friday, April 16, 2010

Conversations with Carmen is a monthly web talk show produced by Action Pact hosted by me.  In one jam-packed hour your team will hear from an expert in the culture change movement on a timely subject, be exposed to some up-to-date "Culture Change in the News," and a closing feature called "Words to Consider" - taking a look at undignified language and dignified replacements to consider.  To sign up go to www.culturechangenow.com. 

 

Enabling Technology: An Open House

Tuesday, April 27, 2010 at Georgia Tech

Please join us for our open house event featuring interdisciplinary and collaborative research on design and technology to promote the health, active lifestyles, and societal participation of people of all ages and abilities.

 

Richard Taylor, PhD to Speak at Assisted Living Symposium

Assisted Living: HOTEL or HOME? Humanizing Care and Creating HOME in YOUR Organization

Thursday, April 29, 2010 in Atlanta

Information and Registration

 

"Thinking Outside the Box" Conference on Policy, Service, & Research for Older Georgians in the New Decade

Monday, May 3, 2010 in Atlanta

We invite you to join us for a conference on "Thinking Outside the Box: Policy, Service, and Research for Older Georgians in the New Decade." The conference will take place on May3, 2010 in Atlanta, Georgia at the Cobb Galleria Centre.  This one-day Georgia Conference on Aging is an opportunity for leaders from around the state to gather and share ideas.   More.

 

Creating Home in the Nursing Home II: A National Online Symposium on Culture Change and the Food and Dining Requirements is NOW AVAILABLE!

Pioneer Network and the Centers for Medicare & Medicaid Services (CMS) are collaborating to offer this special online symposium to focus specifically on culture change and dining. (This is the Symposium that was snowed out earlier this year...) More

 

5th International Eden Alternative Conference

The Art of Creating a Caring Community...Meeting the Challenges
June 13 - June 15, 2010

www.edenalt.org/5th-eden-alternative-international-conference

 

Pioneer Network’s 10th National Conference

Crossroads  Hoosiers Banner

 

Learn More

Presbyterian SeniorCare PANEW! Pioneer Network is pleased to announce the confirmation of Kathy Greenlee, Assistant Secretary for Aging of the U.S. Department of Health and Human Services (HHS) as one of the plenary speakers. Kathy Greenlee was appointed by President Barack Obama as the fourth Assistant Secretary for Aging at the U.S. Department of Health and Human Services and confirmed by the Senate in June 2009. Ms. Greenlee brings over 10 years of experience advancing the health and independence of older persons and their families, and Pioneer Network is pleased to be able to have her speak to our conference attendees.
NEW! We know change is hard work and it takes a team approach to make it happen. So, we are introducing our Culture Change Team Special which includes both the full conference and a full day intensive. You and your organization qualify if there will be four or more registrants from the same address. Give your interdisciplinary teams an opportunity to experience the engagement and excitement that our conferences are known to provide!

 

 

 

 

CULTURE CHANGE THROUGHOUT THE CONTINUUM OF LIFE-LONG LIVING & LONG-TERM CARE

 

New Nursing Home Philosophy Relieves Guilt for Children of Aging Parents.

(Source: DesMoinesRegister.com)

Candy Danielson of Urbandale and her siblings needed to make an important decision and make it fast. Their father had died, leaving their ailing mother, Ginny Cota, 83, residing alone in Arizona .  "We had to find a (care center) real quick, because we wanted to get Mom up here," Danielson, 52, says. "So my sister and I took a day looking at places, and we were so depressed."  Then they discovered the philosophy of person-centered care (also sometimes referred to as person-directed care). More

 

(Source: Caregiving at the Crossroads)

Have you ever heard of the Pioneer Network? It’s a website and a movement devoted to changing the culture in nursing homes today. I’d heard about this movement, and certainly heard the words “culture change” associated with nursing homes for the past two decades. I thought that real culture change was happening everywhere, in every nursing home in the U.S.

And then I was faced with a personal crisis. My mother needed nursing home care following a severe car accident. Three years later, my mother-in-law needed nursing home care following surgery for an intestinal blockage. Both experiences left me convinced that even though Oregon is one of the leaders in culture change in the U.S. , for families like mine, in the nursing homes we carefully selected, it was DOA – dead on arrival... More

 

Next Generation of Nursing Homes

The Greenhouse Project Is a Different Kind of Facility for the Elderly -- The Kind of Place One Could Call a Home

(Source: www.cbs6albany.com)

THE GREEN HOUSE® Project Here is the segment that was broadcast in Albany, NY on CBS6.

Next Generation of Nursing Homes

Choosing a Nursing Home Can Be Harder In Some States than Others

(Source: Carol Bradley Bursack)

Few people say, during their middle years, that they hope to take their last breath in a nursing home. However, the reality is that many of us have, and many more of us will. I know. Juggling the care of five elders at one time, plus two children and other demands on my time, made a nursing home for a few of my elders a necessary choice…

 

As with so many issues, awareness is half the battle. During the last century, nursing homes, while still having distinct personalities, still leaned toward the staff efficiency, military model. This was not beloved by the public, but accepted because, well, that was the way nursing homes were.

 

However, Baby Boomers have become more aware of nursing home culture as their parents hit the age where such care is needed. And Boomers haven't been, in general, pleased with the average facility.

Activists to the core, this generation has been pushing for change and they are getting results. Change is slow, and much depends on state regulations and expectations. But progress is being made. In another decade, through hard work and awareness, most nursing homes should reflect the new attitude of person-centered care that is the goal of culture change ... More

 

How To Start A Movement

(Source: www.ted.com Kudos to RoseMarie Fagan)

TED Talks With help from some surprising footage, Derek Sivers explains how movements really get started. (Hint: it takes two.)

 

The Culture Change Way: Empowering Direct Care Workers to Improve Care

(Source: Direct Care Alliance)

NCCNHR, the Pioneer Network, ombudsmen programs, citizen advocacy groups, and others around the country are working to spread culture change principles and practices in our nation’s nursing homes. These principles are aimed at improving quality of life and care for residents by making nursing homes into true homes, not the medical-model institutions they too often are, with inflexible management hierarchies that put residents on the bottom of the pyramid.

 

To accomplish that goal, we must create a new role for direct care workers, valuing their work and relationships with residents and giving them more autonomy and decision-making power so they can deliver the individualized, “person-centered” care residents want and need. The traditional task-focused, almost assembly-line role assigned to nursing assistants in nursing homes actually gets in the way of delivering good care, forcing workers to do things like wake people up way to early to prepare them for meals or bathe them when they don’t want to be bathed... More

 

Four Absolute Principles To Organizational Change

(Source: http://www.articlesnatch.com)

There are certain things readers need to keep in mind when you read articles like this. This is to make sure you understand the first step needed to make sense of this.  Courage! Courage, is defined as "the quality of mind or spirit that enables a person to face difficulty, danger, pain, etc., without fear; bravery."

 

There are at least 4 bedrock principles for the courageous who want to change their culture... More

 

Seniority Spirit: A New Hospitality Program Focuses On Radical Culture Change In Long-Term Care Communities

(Source: Advance for Long-term Care Management)

Two years ago, Sloan Bentley, CEO of Seniority Inc., Pleasanton, Calif., began to seriously consider what it would take to ensure the consistency and success of hospitality efforts at long-term care communities, from CCRCs to assisted living. While the comfort and care of residents in all long-term care communities is of paramount importance, Bentley noticed that many of her client's communities lacked a strong, definitive culture that constantly reminded staff members of their mission as caregivers…

 

So Bentley decided to learn from a company known to provide consistently exceptional hospitality: the Ritz-Carlton.  "The Ritz-Carlton has a very defined training and culture that is reinforced on a daily basis," Bentley says. "We thought it was a wonderful program, but we recognized that a program for a hotel wouldn't be relevant to the retirement housing business."  Unlike hotel guests, long-term care residents live in the communities year round... More

 

Safe in Bed?

(Source: The New Old Age in The New York Times by Paula Span)

Despite potential hazards, bed rails are still used in many nursing homes and assisted living facilities…  Early on Christmas morning in 2004, a staff member walked into Harry Griph Sr.’s room at the New Perspective assisted living facility in Brookfield, Wis., and found that Mr. Griph had died. 

 

This was probably not a shocking development in itself. Mr. Griph, who was 75 and a retired phone company worker, was a hospice patient, given a diagnosis geriatricians call failure to thrive, a multifaceted decline that most commonly occurs toward the end of life. He had a do-not-resuscitate order.  But the way he died was unexpected. “He was found with his neck entrapped between the mattress or bed frame and the rail,” said Jeffrey Pitman, a lawyer in Milwaukee who represents Mr. Griph’s three children and his estate. “He was asphyxiated.”  READ MORE

 

Alarms Must Go

(Source: Power-Up Friday by Al Power)

Speaking at the Life Services Network’s annual meeting in Chicago  I caught part II of a nice session on Nursing Strategies for Culture Change, facilitated by Barbara Frank. Barbara framed the session around the concept of moving culture change forward by encouraging critical thinking. She encouraged nurse managers to convene daily team meetings, to facilitate communication and provide an avenue for collaborative, creative problem-solving (i.e., helping staff take charge in managing change).

 

The fun really began when she applied the critical thinking concept to the use of alarms in nursing homes. Bed and chair alarms have replaced restraints in the care of people at risk for falls. But do they work? Using a critical thinking discussion, punctuated by the testimonials of volunteers who wore “tab alarms” for 15 minutes (setting them off with even slight shifts in position), Barbara basically showed the futility of this approach.  Alarms do not prevent falls… More

 

We Can Do It

 (Source: Seth Godin’s blog)

We_can_do_it

Too often, it seems, this attitude is missing from teams, organizations or the community. It's missing because people are quick to opt out of the 'we' part. "What do you mean, we?" they ask. It's so easy to not be part of we, so easy to make it someone else's problem, so easy to not to take responsibility as a member of whatever tribe you're part of.

 

Sometimes it's missing because people disagree about what 'it' is. If you don't know what you're after, it's unlikely you're going to find itWe can do it

 

 

10 Senior Housing Development Trends for the Next 10 Years

(Source: Ecumen)

Senior housing has changed dramatically and much more is ahead. Following are 10 senior housing development trends Ecumen sees over the next decade:

 

National Demonstration Projects on Culture Change and Use of Information Technology in Nursing Homes.

(Source: Joe Angelelli on Facebook)

 PHI will be putting out something soon, but Sec. 6114 in Title VI, Subtitle B (Nursing Home Transparency and Improvement) says this:  National demonstration projects on culture change and use of information technology in nursing homes. Requires the Secretary to conduct two facility-based demonstration projects that would develop best practice ... The first would be designed to identify best practices in facilities that are involved in the “culture change” movement, including the development of resources where facilities may be able to access information in order to implement culture change. The second demonstration would focus on development of best practices in information technology that facilities are using to improve resident care. More

 

Think Different

(Source:  Bill Thomas in Changing Aging)

This is what happens when you begin a process with a truly open mind about what is possible. Opening the mind is the hardest part. After that, everything just gets easier.  (Make sure you look at the hands!) More

 

 

ATTITUDES ABOUT AGING

 

You’ve Got Nothing to Fear from Dementia Sufferers

(Source: KENT NEWS)

A campaign challenging public perceptions of dementia has been launched after figures revealed one in three people are uncomfortable around sufferers. 
The new NHS Living Well drive employs people with dementia to educate the public with the message: “I have dementia – I also have a life”.  MORE

 

Survey Says People in Hong Kong Lack Knowledge About People With Dementia and Misunderstand Conditions And Needs

(Source: www.news.gov.hk)

Hong Kong people lack knowledge about people with dementia and misunderstand the patients' condition and needs, according to a new survey. 

 

About 760 people were interviewed in the Department of Health and Chinese Dementia Research Association's survey. More than half said they would feel looked down upon if a family member had dementia. Nearly 40%  thought demented patients should live in elderly homes while some would avoid contact with such patients and thought an increase of care services for them would be wasteful…

 

"Acceptance and communication, helping patients to live with safety and dignity are all crucial to enable their last journey in life to be fulfilling, with no regret to their families." More

 

Dealing with Dementia

(Source: Guardian.co.uk)

My father's early-onset Alzheimer's has not stopped him enjoying life. The blight is more often others' fear and ignorance…  My parents' day-to-day experience of living with dementia suggests we should think twice before judging behaviour that seems odd or rude – tricky, perhaps, during a chance encounter. But a survey commissioned by the government and the Alzheimer's Society to support a public-awareness campaign launched this month reveals a deeper level of discrimination against people with dementia. One in three said they would find it difficult to spend much time with someone affected by the condition, and more than half said they did not know enough to help someone who has it.  MORE

 

Alzheimers

Still smiling: a woman with dementia and her carer from the Alzheimer's Society

 

 

Erasing the Stigma of Dementia

(Source: Carol Bradley Bursack at ElderCarelink.com)

…Not all dementia present the same symptoms, however many symptoms overlap and people can have more than one type. A common thread, however, is that dementia tends to carry the same stigma as any mental illness.  Dementia: How Times Have Changed - Or Not…

 

Decades back, if Grandpa was a little dotty in his thinking the family was told he had senile dementia. It was just old age. The family often tried to keep him at home as much as possible so that they needn't be embarrassed by his behavior. This treatment wasn't much different than when they kept a mentally disabled child locked in a room when company came. Disturbing as it is, this treatment was often more from lack of education than lack of love.

 

Today, when tell-all books, TV shows, and blogs are rampant, one would think that dementia would hardly be something that would embarrass an elder's family and friends. But I found out the hard way that the stigma of mental illness, dementia included, hasn't gone away.  MORE

 

 

THE ELDERS (THE PEOPLE WITH & FOR WHOM WE’RE DOING THE DOING)

 

The Definition Of An Elder

(Source: Joe Angelelli on Facebook)

“A beautiful clip of culture change pioneer Barry Barkan from 1983 -- laying it all out back then with "a whole lotta joy!" I love you Barry and Debbie!" Click here.

 

The Elders Speak: Desmond Tutu, Jimmy Carter And Mary Robinson

(Source:  The Huffington Post)

Desmond Tutu: We are all connected. What unites us is our common humanity. I don't want to oversimplify things - but the suffering of a mother who has lost her child is not dependent on her nationality, ethnicity or religion. White, black, rich, poor, Christian, Muslim or Jew - pain is pain - joy is joy. In Southern Africa we have a concept called Ubuntu - which is that you can't exist as a human being in isolation. You can't be human all by yourself. We think of ourselves far too frequently as just individuals, separated from one another, whereas what you do, what I do, affects the whole world. Taking that a step further, when you do good, it spreads that goodness; it is for the whole of humanity. When you suffer or cause suffering, humanity is diminished as a result. More

 

 

THE STAFF (THE PEOPLE DOING THE DOING)

 

Pay at Assisted Living and Group Homes Reviewed

(Source: WTVA)

BIRMINGHAM, Ala. (WTVA) – The U.S. Department of Labor’s Wage and Hour Division is focusing on enforcement of the Fair Labor Standards Act for workers in Alabama and Mississippi assisted living and group home environments. The agency says low-wage workers in the industry are particularly vulnerable to wage violations. The FLSA plans to visit assisted living and group homes over the next three months to ensure they are in compliance with minimum wage, overtime, and child labor laws. They will also review pay practices for occupations where workers may be subject to wage violations. Those jobs include certified nursing assistants, licensed practical nurses, janitors, cooks and other low-wage hourly workers. Employers found to be violating minimum wage and overtime rules will be required to pay back wages, and could face fines.  The FLSA requires covered employees be paid at least  $7.25 for all hours worked and time and one-half their regular rates of pay for hours worked over 40 in a workweek.

 

 

 

LIVING LIFE & ACTIVITIES

 

Pets Add Joy to Lives of Elders

(Source: Carol Bradley Bursack)

Dear Carol: My grandmother should be in assisted living, but she won’t move because of her ancient cat. I know she loves the cat, and I think the cat is good for her. Are there places that take pets along with the elderly? – Ben

Dear Ben: Numerous studies have shown that elders can benefit from having animals around…  Many nursing homes now have pets as part of their environment. This approach is part of the culture change movement to provide more resident-centered care. Cats, dogs, birds and fish add to the homelike atmosphere of any kind of care center… More

 

Finding Activities for Parents With Memory Loss

(Source: New Old Age in The New York Times)

I’ve invited the clinical psychologist Cynthia Green, an assistant clinical professor of psychiatry at Mount Sinai Medical Center in New York and the author of several books on memory (including “Through the Seasons: An Activities Book for Memory Challenged Adults and Caregivers“), to join the conversation today. I’ve been hearing laments about the difficulties of visiting relatives with dementia; people yearn to make that time together enjoyable and meaningful, but they can’t always figure out how to connect. Dr. Green has some thoughtful suggestions. — Paula Span

 

When someone we love receives a diagnosis of memory loss, we fall headfirst into the (usually) unasked-for role of manager, overseeing both the major decisions — whether a move is necessary, for example — as well as the minor, everyday ones.

 

Yet once the dust has settled and we’ve established a routine, we face a different problem. What can Mom or Dad do? How should they spend their time? Shouldn’t they be doing something?  Shouldn’t we be doing something with them?

 

A friend summed up this aspect of the caregiving dilemma to me and some friends at a recent “girls’ night out,” where she bemoaned the dearth of activities her mother could manage. “She used to love to read, but that’s out — she can’t stay focused,” she explained. “And she really isn’t walking well enough to go out without lots of help. So she just sits there doing nothing. It breaks my heart." More

 

(Source: The Huffington Post)

I didn't know much about Alzheimer's before watching "I Remember Better When I Paint" and nor did I really care. I'm not a monster-- it's just that the disease had never affected anyone I knew. This is not to say I was indifferent to the suffering experienced by those with the disease, or the sacrifices made by their caretakers. However, I had picked my battles with injustice and left this fight for someone else to wage. And wage on they did. Berna Huebner and Eric Ellena have crafted a poignant documentary about hope in a world where hope is seldom found.

 

"I Remember Better When I Paint" follows the progress of Alzheimer's patients who are introduced to the creative arts. Once disconnected from the world, these Alzheimer's sufferers are suddenly brought back-- be it by a discussion of a Seurat painting or a debate over what color to apply for their Renoir reproduction. One of my favorite parts of the film was when one elderly gentleman was asked to draw Honolulu ; rather than white sand beaches and shiny hotels, he drew a war-ship with 'Destroyer' on its bow. He was a late-stage Alzheimer's patient having a very lucid memory of his days in the service. Amazing ... More

 

The Beat Goes On – Despite Alzheimer’s – for Retired Professor

(Source: Mercury News Services)

 

Elora kettle drummer still plays in three orchestras
As far as David Knight is concerned, the beat goes on. The Elora musician is living with Alzheimer’s disease but still plays the kettle drums in three orchestras.  “I’ve been playing music my entire life,” says the 68-year-old retired professor, who taught at both Guelph and Carleton universities. “It keeps me going ... I’d like to think that it has actually helped me keep the disease at bay.  MORE

 

Former Elementary Art Teacher Now Works With Alzheimer's Patients

(Source: The Star Press)

It started with real paint brushes and make-believe paint, applied to the big-band sounds of Tommy Dorsey.   "This lady loves to paint!" Laurie Lunsford had announced over the music, greeting the advanced Alzheimer's patients as they were rolled or escorted into the activity room at the Golden Livingcenter. Now with dry brushes in hand, they stroked and dabbed on a print of a painting by Michael Coleman called In the Adirondacks, practicing for the fun to come…

Maxine Seiwart paints during class at the Golden LearningCenter. More

 

 

DEMENTIA

 

Giving Researchers a Face for Alzheimer’s

 (Source: The New York Times)

For the first time, young Northwestern University neuroscience researchers left their labs to meet victims of a recently diagnosed disease that the scientists are struggling to understand…  “This was the humanization of what can be a very nonhumanized process, looking at patient and disease rates,” Mr. Sebel said. “But I won’t forget those faces. They are the faces of the disease.”   MORE

 

Homeward Bound: Having Alzheimer’s Does Not Mean You Are Less Than You Were

(Source: Alzheimer’s Reading Room)

When we work with people who have Alzheimer’s we recognize that there may be confusion about time and place, but the emotions, the feelings are real. Wanting to go home again, to go back to a place in time when life was not so difficult is a perfectly understandable human emotion. More.

 

Mealtime Tips for Dementia Caregivers: Easier Mealtimes for Older People with Advanced Dementia

(Source: Suite101.com)

Dementia caregivers can improve their loved one's mealtime experience by making it simpler, safer and more enjoyable, in turn preventing malnutrition and weight loss.

Mealtimes can be challenging when caring for someone with advanced dementia. Your loved one may no longer recognize food or remember how to use knives and forks. They may wander off the table when it's time to eat, and develop dangerous eating behaviors, like putting too much food in the mouth; eating too fast; swallowing without chewing; and attempting to eat non-edible items.

 

This has two negative consequences: weight loss and dehydration, as a result of not eating and drinking enough, and increased risk for life-threatening complications, including pressure ulcers, infections and aspiration pneumonia.  Following are tips by dementia care experts, to ensure older people with the disease receive all the nutrients they need, within a safe and pleasant mealtime experience.  MORE

 

 

 

TECHNOLOGY

 

New Technology ‘Unlocks’ Memories of People with Dementia

(Source: 24dash.com)

The Computer Interactive Reminiscence and Conversation Aid (CIRCA)
 system

The Computer Interactive Reminiscence and Conversation Aid (CIRCA) system

People with dementia can be helped to communicate more effectively by unlocking their memories, thanks to innovative technology that has been designed by experts at top British universities…  “Effective communication with their carers gives people with dementia a way to positively express themselves and improves their overall quality of life." More 

 

World's First E-Diapers to Monitor Incontinence Among Aged

(Source: www.themoneytimes.com)

An Australian company claims to have created electronic underpants that can send text messages and pages if the wearer becomes incontinent.  Simavita, the company that owns the product, announced Friday the rollout of what it claims is the world's first electronic underpants.  MORE

 

 

FROM, FOR & ABOUT CAREGIVERS & CONSUMERS

 

We Don’t Like Nursing Homes

(Source: Alzheimer’s Reading Room)

Several years ago, we became default caregivers for our aging parents who were precipitously declining into the gloomy inevitability of dementia, Alzheimer's and death.  We were immediately underwater, trying to cope with the minute-by-minute challenges we were facing. Because of this life-changing experience, we decided to bring the best advice and counsel to our fellow Boomers who are similarly encountering these demands… We don’t like nursing homes. Never have. It’s not just because so many of them “chemically restrain” their residents with horrific drugs. In many nursing homes, you will see the residents, strapped into wheelchairs, clustered pathetically around a big-screen TV set, helpless and unattended, drug-addled and apparently comatose. What you’ve witnessed are the faces of atypical antipsychotic drugs.

 

The reason we don’t like nursing homes is that we’re two of the millions of Boomers who want to “age in place.”  We’re like the seniors in a 2007 study, Aging in Place in America, who, when asked what they feared most, rated loss of independence (26 percent) and moving out of their homes into a nursing home (13 percent), while the fear of death was the greatest fear of only three percent. In response, to the widespread animosity toward nursing homes and the dawning realization that a humongous number of Baby Boomers are going to need help with their daily activities, a variety of alternatives to nursing homes are springing to life. These facilitates are designed to allow Boomers to “age in place.” Here is a snapshot of several of them… MORE

 

Guest Post by Richard Taylor - A Letter to the Alzheimer’s Association

(Source: www.themythofalzheimers.com)

To Robert Egge, Vice President of Public Policy and Advocacy:

I still believe you-all at the National Alzheimer’s Association need to be more specific about the need, cost, quantity and percentage of research funds spent on psychosocial research vs. bench research in your quest for the cure. While this is of some benefit to the 16 million potential, soon to be real people walking around with the symptoms of Alzheimer’s disease (and by the way why don’t you include the other 10 millions folks who will be walking around with other forms of dementia - all your press releases make it sound like you are exclusively committed to finding a cure for Alzheimer’s disease)…

013108.Alzheimer's.sjg

I appreciate what you and your staff are doing in Washington, D.C. I applaud your relatively recent efforts to begin to include people with dementia in your advocacy efforts (thought I think much more involvement is needed at more levels than just testifying). Congress needs to hear more from people with dementia and less from physicians, researchers, and caregivers - each of whom have their own personal agendas that only indirectly serve us. It’s not that other voices and perspectives aren’t important to hear, its’ that we are tired of having other people talk, advocate, testify on our behalf… MORE

 

AAHSA Consumer Research Digest, Presented by The Cabinet on Future Needs of Consumers

Type “aging baby boomer” into any Internet search engine and you’ll receive a list that contains thousands of studies, reports and news items about the generation born between 1946 and 1964 – the generation expected to begin entering retirement in record numbers in less than five years. The quality and relevance of these resources will vary. Indeed, it can be very challenging work to uncover the nuggets of truth that are hidden in the sometimes overwhelming amount of available information. This Consumer Research Digest attempts to do just that.   

This collection of resources contains credible and informative research that can shed light on the issues that older consumers will face in 2016 and beyond. Those future consumers will differ in important ways from the consumers that we now serve. In order to be ready to offer services that consumers will want to purchase, providers must take time away from their day-to-day challenges, put their feet up and imagine new ways of serving a new aging population. 

The AAHSA Cabinet on Future Needs of Consumers hopes you will read our Consumer Research Digest carefully; share it with your board members, staff, residents, policy makers and community partners; and use it to guide your efforts to plan high-quality services for future consumers. More

 

Researcher Creates Award-Winning Caregiver Site

(Source: Alzheimer’s Daily News)

(Source: Weill Cornell Medical College) - Researchers at Weill Cornell Medical College have created an interactive web site providing information on how to create safer homes for people with dementia ThisCaringHome.org. This award-winning site focuses on ways to adapt the home environment to meet the behavioral and physical needs of people with Alzheimer's.

 

"Persons with dementia and their caregivers deserve better lives and more help with the everyday challenges they face," said Rosemary Bakker. "When I was a caregiver, I learned that people with Alzheimer's experience the world differently than we do. Once you understand this, there is a lot caregivers can do, especially to the home environment, to help the person lead a safer, more functional and fulfilling life. And it makes caregiving less difficult and more rewarding. But without guidance, it's easy to get overwhelmed."

 

“We have a need and expect it to be fulfilled.”

(Source: http://bridgingheartandmarketing.com/blog/)

A fundamental principle of capitalism says — “Find a need and fill it.”  That’s the way entrepreneurs, product creators, and corporations operate. But this implies a passive consumer who waits for his/her need to be fulfilled… BUT . . . what would happen if you, the customer/consumer, were to become proactive — that is, what if you and those like you got together, literally or energetically, and proactively demanded particular kinds of products…  MORE (NOTE:  Consumers are starting to demand CULTURE CHANGE!)

 

Next Step in Care Guides Help Family Caregivers and Health Care Providers Work Together To Make Transitions in Care Easier and Safer

(Source: Next Step In Care)

The United Hospital Fund’s Next Step in Care guides (www.nextstepincare.org) are designed to help family caregivers and health care providers work together to make transitions in patient care easier and safer. Transitions occur when a patient moves from one care setting to another. To make the best use of the guides, you first have to understand that you are in fact a caregiver.  MORE

 

 

DESIGN & ARCHITECTURE

 

(Source:  TreeHugger)

As the boomer generation hits retirement, where are they going to live? Many will want to stay in their neighbourhoods, close to their family. In an era where it is becoming impossible to get a mortgage, perhaps they may even want to share their house with their kids.  FabCab isn't just another pretty prefab, but part of a plan to address this demographic certainty. The FabCab creators are taking advantage of the changing zoning bylaws that allow Granny Flats and accessory dwelling units. More

 

Design Project Aims to Improve Quality of Life for Dementia Patients

(Source: Nursing Times)

Old engine parts and other objects that remind people of their former working lives can help improve the quality of life for dementia patients ...  MORE

 

 

 

DISABILITY COMMUNITY

 

Working Together, Aging and Disability Groups Can Be a Powerful Force

(Source: VAN e-Bulletin)

The forum and e-Bulletin for this month focus on disability. I’ve long been interested in the connections between aging and disability because I have studied and taught about aging and because I became disabled in a car accident in early middle age. Traditionally few connections, if any, have existed between younger adults who struggle with long-term disabilities and older adults who become disabled in late life. Younger people with disabilities haven’t wanted to identify with old people. Older adults don’t want to be associated with disability, which, unfortunately, they seem to link with getting ready to die. Interestingly, increasing numbers of persons with early onset disabilities are now living long enough to qualify for aging services.  MORE 

 

 

 

NURSING HOMES

 

Changing the Culture of Nursing Homes: The Physician’s Role

(Source: Archives of Internal Medicine)

Nationally, 1.5 MILLION PERSONS LIVE IN NURSING HOMES, many under conditions that we would not want for ourselves or for those we love. William Thomas,MD (developer of the Eden Alternative), articulated 3 common conditions that afflict nursing home residents: boredom, loneliness, and helplessness. 

 

Fortunately, there is a growing movement to change the culture of nursing homes so that they are more resident centered. Changing the culture of nursing homes requires a concerted effort to provide stimulating activities and opportunities for spontaneity and meaningful social interactions for residents, while facilitating their sense of worth by caring for pets, gardens, and each other. Cultural change also involves creating a comfortable, homelike setting that is more like a community than a hospital. This includes making the nursing home less institutional and more homelike, with the addition of color, natural light, plants, pets, and home furnishings.

 

However, the biggest change that is needed is to reengineer the resident care planning process to be resident centered and resident directed, which means that the wishes of residents, rather than the dictates of staff, determine activities, choice of meals, and schedules. Nursing homes that have accomplished cultural change report less staff absenteeism and lower staff turnover, fewer resident behavioral problems, lower use of psychoactive medications, decreased incidence of pressure ulcers and contractures, and fewer complaints. Both resident and staff satisfaction are higher, and family visitation increases.

 

Recognizing these positive outcomes, resident-centered care is strongly supported by the federal Centers for Medicare and Medicaid Services, the primary payor of nursing home services in the United States.  In the January 11, 2010, issue of the Archives, Lopez et al2 validated the positive impact of cultural change on nursing home residents….  MORE

 

Person-Centered Care: Dealing with Culture Clash in Nursing Homes

(Source: Carol Bradley Bursack in www.eldercarelink.com)

Today's person-centered nursing homes are scrambling to please everyone. They are installing Wii game systems which allow elders of many ages to virtually bowl, when they wouldn't be strong enough to lift a real bowling ball. They give the very old, the young old and even boomers a way to connect on common ground.

 

These homes may have to install two types of restaurants--one, an old style country store with a common coffee pot and checkered table cloths and one with computers and three types of java, but hey, if it works, why not?

People treated as individuals are nearly always easier to care for. They also get along better with their peers. So, even if Grandpa George scolds your dad about leaving food on his plate, your dad may still be a happy camper, since he knows he can soon escape and listen to Bob Dylan sing about rebellion.  MORE

 

 

 

ASSISTED LIVING

 

When Yes Really Means No: Assisted Living

(Source: www.ArticleAlley.com)

"I don't know what you are talking about," replied the Executive Director of a very posh Assisted Living Community I had just moved my clients into. I had just listed the problems I saw with the care my clients were getting. "We just had our town hall meeting and all the residents said everything was great." I am hearing this clueless response more and more as the number of Greatest Generation seniors continues to fill Assisted Living Communities. Everything is not great, but they will tell you it is, and this is why.  MORE

 

 

ADULT DAY

 

Institute on Aging Study: Adult Day Health Care Improves Senior Participants’ Quality of Life

(Source: Earthtimes.org)

SAN FRANCISCO - (Business Wire) A recent study by San Francisco’s Institute on Aging (IOA) documents that adult day health programs play a vital role in helping senior participants maintain their health and independence. Since the 1970s, adult day health care has been promoted as an alternative to nursing home care for seniors with chronic illness, disability, or dementia. There are currently 4,600 adult day health centers operating in the United States, but little scientific research demonstrating their impact on the health of senior participants.  MORE

 

Adult Day Programs: A Reprieve for Families and the Elderly

(Source: The New Old Age in The New York Times by Paula Span)

The other morning, I stopped by Senior Care, an adult day program near my home in Montclair, N.J. Things were hopping, as usual…  Though almost 4,000 such programs around the country serve older adults who are frail, isolated, chronically ill or demented, I still think these adult day centers constitute one of the better-kept secrets in elder care… 

 

People who might otherwise sit home alone with the remote, or who might move into a facility because they can’t stay home alone, instead spend several days a week being active, social, stimulated, well nourished and — at health-oriented adult day programs like this one — monitored by nurses. At the end of the day, though, the participants go home to familiar surroundings, and the centers often provide the vans that take them there… More

 

 

Grants Available for Social-Model Day Programs

(Source: BrookdaleFoundation.org)
The Brookdale Foundation will make grants for the development of new dementia-specific, social model day programs. The 2010 request for proposals for starting social model group respite and early memory loss programs for people with Alzheimer's disease and their family caregivers is now available. Funds may be requested by private non-profit 501(c)(3) or public agencies. More  

 

 

 

END-OF-LIFE & HOSPICE

 

The Secret of Caring: The Art of “Doing No Harm” When Making Plans for End-of-Life Care

(Source: Dr. Bill Thomas)

“How should we conceptualize an ideal discussion about goals of care? ‘Goals of care’ implies a purpose to care, beyond caring itself. In other words, what interventions are we considering towards what end?

 

Translation: What happens when we confuse the art of caring with the mundane details of tasks and procedures?  MORE 

 

 

EDUCATION

 

Elders in Community

(Source: Power-Up Friday by Al Power)

A collaboration between Nazareth College and St. John’s in Rochester has just won the Sigma Phi Omega Service Project Award for innovation in undergraduate education.

 

David Steitz, PhD, teaches an upper level psychology course called “Issues in Aging”. On most campuses this would simply be a class of young adults, taught by a middle-aged professor. But this course has added a new dimension. The 22 undergraduate students hold their class at St. John’s Meadows, our independent living campus, and 13 elders from the Meadows attend the weekly class as well. This idea was supported by a local consortium of academia and local business leaders, in order to create connections between elders, students and business organizations… More

 

 

 

VOLUNTEERING

 

Boomers Seeking Personalized Volunteering

(Source: US News & World Report)

Surge in self-directed volunteering reflects desire to use specific skills and meet personal needs.  If you have time and an interest in volunteering, you literally can create your own program. Aided by Internet sites that match needs and volunteers, along with other "do it yourself" online tools, boomers are rewriting the book on how volunteering works.

 

AARP has kicked off a large volunteer effort through its Create the Good program and website. "People want more flexibility in their volunteering," says Barb Quaintance, AARP senior vice president for volunteer and civic engagement. There is a preference for self-directed volunteer efforts--more than half of all boomers select this approach, according to AARP--that allow people to satisfy their needs as well as those of the recipients they help…  MORE

 

 

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